This informal evening will be of interest to families who have children entering school or in early years’ classrooms. Coffee and a light snack will be provided. Our chat will be facilitated by Lorraine Baydack & Val Surbey. The chat will be held at 120 Maryland, Winnipeg, from 7 - 9 pm on May 13, 2014.
Lorraine taught in early years’ classrooms and as a resource teacher for 38 years. Val has worked as an educational assistant in a variety of positions for 15 years. Both ladies are able to share their understanding of the funding process, individual education plans, and programming for young learners. They can share their experiences from both the educator and parent perspective.
To register, please call the MDSS office at 204-992-2731 and leave a message, or email Mina at firstname.lastname@example.org
There is no charge for MDSS members. Non members are welcome for a $5.00 fee at the door.
Feel free to leave your questions in advance when you register!
Know Your Rights Session – March 26th, 2014
Community Living is putting on a session called Know Your Rights on March 26th at 120 Maryland Street from 6:30 to 8:30. Contact Community Living to register 204-786-1607
The Session will cover Independent Living, Work and Education (including post secondary). Youth will learn their rights and how to stand up for those rights.
Sexuality and Relationships Session – Continuity Care March 27th
March 27th 9:30 – 3:30 at 120 Maryland Ave. Cost is $75 or $25 for Self-Advocate.
Register by email at email@example.com
Session speaker will be Sandy Hyman (MSW, RSW, CACE) who is an award winning social worker and community leader with 30 years experience. Sandy has over 5 years experience teaching Adult Education as a continuing education instructor at Red River College. Sandy worked in schools with adolescents and adults with disabilities in the area of sexuality education.
Topics will include; Appreciating my changing body, the importance of self care and health considerations, fostering healthy social relationships, reflecting on our attitudes about sexuality education, navigating through difficult and awkward topics, and accessing print, electronic, and community resources
Thanks so much to Stephanie Staples for having Ruth Joseph and Susan Cearns on this morning's (March 16th) CJOB radio broadcast of Your Life, Unlimited. Ruth and Susan were there to promote World Down Syndrome Day, which is coming up on March 21st.
Here is the link: http://www.cjob.com/audio-on-demand/
Scroll down to:
Select a date and time to listen.
Enter March 16 and 9:00 a.m.
Ruth and Susan participated in two segments of the show, so don't stop listening after the first segment!
Our next Buddy Night will be held on April 12th at Celebrations Dinner Theatre for their production of OOTSLOOSE. It will be a great night filled with an amazing show and awesome music.
Cost for this evening is $40 per person which includes the full meal, tax, tip and of course the show. Tickets are being offered at a lower cost with MDSS paying a portion of each ticket. Cost for support person, if required, is $56.
DROPOFF: @ 5:45pm in the lobby at Celebrations -1824 Pembina Hwy
PICKUP: @ 10:30pm in the lobby at Celebrations
Registration can be made by calling or emailing Karen at 204-897-0739 or firstname.lastname@example.org
PLEASE REGISTER BY MARCH 21st. Hurry as we will fill up quickly!
Tune in to CJOB radio at 9:00 on Sunday, March 16th to hear Ruth Joseph raise awareness and promoting World Down Syndrome Day on the Stephanie Staples inspiring radio broadcast; Your Life, Unlimited.
Jordan Power is writing a book about Manitobans with Down syndrome as a final project at Red River College. It's going to be self-published book sold at McNally Robinson as well as directly through the author. All proceeds are being donated to the Manitoba Down Syndrome Society!
Jordan is seeking those willing to share their stories for the book. Each chapter of the book will tell a different person's story with an interview and photos. The book will reflect the successes of people with Down syndrome to show new parents of children with Down syndrome that their is enormous potential in their child. Contact Jordan Power at email@example.com
MDSS Buddy Night Coordinator, Karen Pfeifer, told us a wonderful story of a Random Act of Kindness; "As 23 of us gathered in our reserved area at McDonald's and got settled with organizing the varied meal choices, the participants met each other with hugs and high fives. When we got to the meal counter to place the order, the manager was on the phone with someone and he came over to talk to us. He informed us that a man on the phone would be paying for the total cost of our meals! Apparently the man had been in the restaurant earlier and had noticed our group. Such a wonderful surprise from an anonymous, generous person!"
Thank you so much to this awesome gentleman. Another illustration of how wonderful the human spirit can be. To you, whoever you are, your thoughtfulness and generosity are appreciated greatly by the members of the Manitoba Down Syndrome Society!
RDSP Information Session being held in Portage la Prairie on March 25th, 2015 from 6:30 - 9:30 PM at 40 Royal Road N.
If you or someone you know has a disability and is less than 50 years old, find out how the Government of Canada may help, even if you don’t have money to deposit in the plan. Register by calling 1-204-975-3037 or toll-free 1-866-282-8041 extension 3037. Email: firstname.lastname@example.org
Do you or your clients, friends, family want to learn more about the Registered Disability Savings Plan? This plan is open to Canadians with disabilities who qualify for the Disability Tax Credit and are under the age of 59 years old. It includes grants to maximize financial contributions into the plan and bonds for those who have low income and are unable to make contributions into the plan on a regular basis.
If you are interested in learning more, please contact Anne Kresta at Community Living Manitoba. Anne and her associates, Suzanne Swanton, from Continuity Care and Natalie Mulaire from the Society for Manitobans with Disabilities, are able to provide information workshops on the RDSP as well as one-on-one assistance in helping families and individuals understand the many benefits of this program.
SMD Clearinghouse will be providing volunteer tax preparation for persons with disabilities who fall under the following income based criteria:
Income level for individual - less than $30,000
Income level for couple - less than $40,000
Income level for parent with one child -- $35,000
For each additional child add $2500
Volunteers will not prepare more than 2013 taxes and will not prepare complex returns.
If you have any questions please let me know.
This tax clinic is by appointment only. Call 204-975-3037 to schedule a 1/2 hour appoinemtn. The last appointment is at 7:30 PM. Appointments can be made between 6 - 8 pm on the followoing dates; April 14, 16, 23, 25, 28, 30th, 2014.
NEW Social Club for Youth Age 13 to 17!
Thank you to all parents who replied that they have a young person interested in participating in the new social club! MDSS would like to invite all of these parents, and others who may be interested, to an initial meeting to share ideas about the vision for the club, possible venues, staffing, volunteers, etc. Amy Copper has volunteered to coordinate the club, and Lorraine Baydack will also be at the meeting to share information about our current club, Livewires. Please mark your calendars for
Tuesday, March 4th at 7:00 p.m.
The meeting will be held at the Smitty's, 580 Pembina Hwy (north of Grant Avenue). Please RSVP to Mina at the office to let her know you will be coming!
ACL has created a workshop where we will come together to hear from families who have had experience advocating, as well as join in conversation with each other. This session is being held on March 18th, 2014 at 7 PM at 120 Maryland Street. Register by calling 204-786-1414.
Continuity Care presents "An Introduction to the Vulnerable Person's Act" session on Thursday, February 27th at 7 PM at 120 Maryland Street. This workshop will cover the Act, Five Guiding Principles, Definition of a Vulnerable Person, Supported vs Substitute Decision Making, Applying for Substitute Decision Making.
To register call 779-1679. Registration is $10 for non-members or free for members.
People First of Manitoba and Winnipeg Safety Network invite you to The People First of Manitoba Annual General Meeting (AGM) and "We have Human Rights" Conference March 21-23, 2014.
Come and learn what your rights and responsibilities are at home and in the community. Learn new ways to stand up for yourself when your rights are being restricted. Learn more about the People First Movement and what it means to be a Self-Advocate.
AGM and Conference is being offered at no cost - Hotel accommodations will be provided for out of town guests. Breakfast and Lunch will be provided for all attendees. Even this being held at the Viscount Gort Hotel, 1670 Portage Ave, Wpg, MB.
Deadline to register is March 3rd, 2014. To register call Amy at 204-953-5879.
A message from Community Living Winnipeg;
Abilities Manitoba is launching a campaign to let the Minister of Family Services know there is growing concern for the safety, well being and quality of life of Manitobans with intellectual disabilities. The Minister is being asked to:
Establish an inclusive planning process to ensure the long-term sustainability of services upon which so many now depend.
Ensure that planning fully incorporates the voices of persons with intellectual disabilities, their families, as well as service agencies, their employs and the public
Provide immediate support to those agencies already facing serious financial challenges in maintain basic services.
Take measures needed to provide reasonable wages for agency employees who are among the lowest paid human service workforces in Manitoba
Ensure that other funding decisions made in the short term do not diminish the quality, scope and viability of current services
Community Living Winnipeg is a member of Abilities MB and supports this campaign. We are asking our members, families and concerned citizens to also demonstrate their support in what we are asking the minister.
Postcards are available for pick up at Community Living Winnipeg, 120 Maryland, Winnipeg between 8:30-4:30 or follow this link to sign on electronically. http://www.abilitiesmanitoba.org/
Community Living Winnipeg
The next Buddy Walk date is set for September 28, 2014. Please contact the office if you wish to help out with the event. Our new coordinator, Angie Baydack, will contact you to find a best fit job for you! She and her committee will be looking at the survey results to help steer them as they go about planning our next major fundraiser. The Buddy Walk is currently the only fundraising effort undertaken by MDSS, and with your participation we are able to raise the funds needed by the organization to provide the ongoing programming and events that help us fulfill our mission.
For years now MDSS has offered a free one-year membership to families of new babies born with Down syndrome. It has come to our attention that there are still families, and also adults with Down syndrome, that are still not aware of our organization. In cases such as these, we have decided to offer a free one-year membership to families of individuals with Down syndrome regardless of the age of the child, and to adults with Down syndrome, who have never been members of MDSS before. If you meet a family or an individual with Down syndrome, please ask them to contact the office to arrange for their free, one-year membership.
If you haven’t ‘liked’ us on Facebook yet, please open up your Facebook page and search for the Manitoba Down Syndrome Society! Or head over to the Manitoba Down Syndrome Society website and click the Facebook link. Check us out on a regular basis, as the page is continually being updated with interesting information, events and stories. Our Facebook Page was conceived, created and is maintained by Board Member Olivia Hawrysh. Thanks Olivia, for providing a fascinating always up-to-date Facebook Page!
Has an idea been dancing around in your head? Have you a dream for something for your own child or young adult that, if you could actually make happen, would benefit many others? Is there some small part of your dream that you could start with? Don’t let your idea go, hone it, and then come out to talk to your board about it. This is how all our great MDSS programs and events have gotten off the ground…the See Me Beautiful Conference, the Buddy Walk, Livewires, the Dinner Dance, Sports Events, and Parent Networking Evenings. Contact MDSS to see how we can help!
Our next Buddy Night will be a Hawaiian Dance held on January 18th, 2014 from 6:00 - 9:30 pm at the Fort Rouge Leisure Centre. This event is open to all individuals aged 16 - 28 years who members of MDSS. All events are chaperoned by parent volunteers and paid staff. Attendees are encouraged to dress up Hawaiian style. The Dance begins at 6:30 but arrive time is set for 6 PM to beat the rush!
Cost of the dance and food is $10 each which includes a small "snack" of a Subway 6" sub & a drink.
Please respond to Karen Pfeifer @ 204-897-0739 or email@example.com if you would like to join us.
A seat has become available for a child and a caregiver to take part in the Dreams Take Flight Program.
Dreams Take Flight provides a one day, all-expense paid trip to Disney World for each child and a caregiver. If you are a current MDSS member and you have a child between the age of 6 and 12 years old who has not participated in the program before, you might want to consider this opportunity.
Please visit http://www.ywg.dreamstakeflight.ca/ particularly the What to Expect page, to determine if you would like to put your child’s name forward. Both participants must have passports, and the signatures of both custodial parents are required on the application forms.
Should MDSS have more than 2 names submitted, a draw for the 2 spots will take place at our Dec 4th Board Meeting. DEADLINE FOR SUBMISSION OF YOUR CHILD’S NAME IS 1:00 P.M. ON WEDNESDAY, DECEMBER 4TH. Winners will be contacted the evening of Dec 4th, and Val Surbey, MDSS Vice-President, will assist the family through the registration process.
Have you seen the new Facebook page for MDSS? Click on the Facebook icon on our website main page and sign in to your account to like us on Facebook. Stay connected, share your stories, see new information on your Facebook newsfeed by linking with us today!
The 2013 See Me Beautiful Conference was a great success! We want to send a huge thank you to Lori Lester and Joan Kolbauer for the time and effort you give to make it such a success. The Manitoba Down Syndrome Society is proud to have such great advocates for individuals with Down syndrome.
MDSS extends a big welcome to our three new board members. Welcome to the team! We look forward to working with you!
Elsie Edwards-Gagne, Jennifer Barlin, Shauna Taylor
We are planning the next Buddy Night for Saturday November 9th, 2013 from 5:30 - 9:00pm. This event will be dinner out followed by 10 pin bowling.
DINNER: Smitty's on Portage Ave & Westwood Drive Dropoff at 5:30pm
BOWLING: Academy Lanes West. Pickup at 9:00pm
MEAL CHOICES: ALL MEALS PLUS BOWLING WILL BE $30.00 1). Chicken Parmesan (comes with pasta & garlic toast) 2) Cheeseburger & fries & Caesar salad 3). Chicken fingers & fries & Caesar salad 4). Shrimp stir fry (comes with rice or noodles) & garlic toast
COST: Meal & bowling cost will be combined and this MUST be prepaid by Nov 6 either by dropoff or mail to 5901 Betsworth Ave, R3R 0J8. Cheques to be made out to Karen Pfeifer please.
As with all Buddy Nights, this event is open to all members of MDSS between the ages of 16 - 28. This evening will be supported by volunteer parents and paid staff.** All members must have their memberships paid up to date to attend** If any individual has any extra needs i.e. behavior, toileting or swallowing issues, then that individual MUST bring their own support person.
Spots are limited so hurry to register to firstname.lastname@example.org or by phone to 204-897-0739.
MDSS says a big THANK YOU to Dahlia Kurtz for celebrating National Down Syndrome Awareness Week with us by interviewing Lorraine Baydack, Ruth Joseph and Courtney Sawyer on November 5th at 2 PM. Thanks for helping us spread the word !
NEW Social Club for Youth Age 13 to 17
MDSS is excited to announce that we have found a volunteer to coordinate a new program!
She will need parent input and some support. It will not be a big time commitment.
If you have a child that would like to be part of the new group, please email or call the office by Nov. 18th at noon with your child’s name & the possibility of your support.
If there are interested youth, and enough parent support, we will call a meeting and get the ball rolling!
MDSS 11th ANNUAL FAMILY DINNER & DANCE!
WHEN: November 16th, 2013 5-10pm.
TIME: Doors open at 5:15 pm, dinner served at 6:00 pm.
PLACE: Waverly Heights Community Centre, 1885 Chancellor Drive (next to Arthur Leach School)
WHAT: Enjoy a Family Style served dinner and then a dance to follow.
NEW PRICES! MDSS MEMBERS COST: 10 years and older - $10 2-9 years - $5 NON MEMBERS COST: 10 years and older - $15 2-9 years - $10
RSVP NO LATER THAN NOVEMBER 10th so we can confirm numbers for the caterer. You must pre-order and can pay by credit card or cheque by calling Karen at 204-275-5927. Hope to see you there!
The 2014 CDSS Calendars have been printed! Contact Mina at the MDSS office to place your order by November 30th!
November 1-7 is Awareness Week! Listen to CJOB between 2:00 and 2:30 on November 5th, 2013. On her show, Dahlia Kurtz will be interviewing Ruth Joseph, Courtney Sawyer, and Lorraine Baydack.
A grand total of $33,000 was raised at the 2013 Buddy Walk! Thank you to everyone who walked with their buddies, raised pledges and volunteered for this successful event. A special thanks to the many volunteers who helped make this possible;
Buddy Walk Committee
Mike and Mimi Mirus
Sig and Tannis Laser
6th Annual Buddy Walk a Huge Success!
What do you get when you mix our amazing member families, their friends, a sunny day, entertainment, prizes, pizza, outstanding corporate and personal sponsorships, and a walk through the beautiful Assiniboine Forest at this beautiful time of year?
You get the 6th Annual MDSS Buddy Walk - an inspiring and fun afternoon that generated more than $30,000.00 to support the work of the Manitoba Down Syndrome Society and the Canadian Down Syndrome Society!
Hat's off to Jaxon Budd and his family. Total pledges collected by this family alone were close to $4500.00!
And kudos to Jesse Pfeifer and his family for bringing the most buddies to this year's event. Jesse had 54 walkers on his team!
It was so much fun seeing the creative ways some groups used to identify their team members, including halos, t-shirts, and silly hats. For the kids and the young at heart, there were many mascots and clowns roaming the site, along with wonderful face painting.
Midlife Kyrsis rocked the tent, donating their time and talent to the event. As well, 103.1 Virgin Radio was on site promoting the event, and Lloyd The Intern (LTI) came out to emcee for us.
All profits from pizza sales of Domino's pizza were donated back to the event by this sponsor.
Along the 3 km walk, children, adults, and even the dogs, were able to pick up treats at our seven stations! Once back on site, participants were treated with delicious cupcakes, followed by draws for our many raffle prizes and 50/50 prizes.
Such a large scale event would not be possible without the generous donations of time, talent, and sponsorship of many, many people and businesses.
First, to our major corporate sponsors - Pet Valu, Ladco Company Limited, E-L Drilling, and Bison Transport, and to our many other sponsors and donors, we extend our sincere gratitude to you for supporting our cause. We encourage our members and their families to check out the sponsorship page and support these businesses!
Second, thank you to our volunteer committee members, most of whom worked tirelessly for months to ensure that the 6th Buddy Walk would be the great success it was. It takes real teamwork to put on an event of this scale. To the 2013 Buddy Walk Committee members, you did an outstanding job! Under the leadership of Debbie Hodges, the following people made up the committee: Ken Hodges, Norine Hodges, Karen Pfeifer, Maria Pereira, Dennis Lafreniere, David Carr, Carol Yaschuk, Val Surbey, Mina Orchard, Lorraine Baydack, Laurie Jackson, Colleen Evans, Alex Goodman.
Thanks also to all the volunteers that came out the day of the event to ensure that things ran smoothly.
Visit the web site again in the next couple of weeks for photos of the event and a complete list of volunteers.
MDSS wishes to acknowledge Debbie Hodges for her tireless effort as Buddy Walk chair over the last two years. She has decided to step down, and MDSS is looking for a new coordinator and committee members for our 2014 Buddy Walk. Please call or email the office if you can help out...we need a committee chair and committee members in order to go ahead with a walk next year.
Celebrate National Down Syndrome Awareness Week by attending the MDSS 11th ANNUAL FAMILY DINNER & DANCE!!
WHEN: November 16th, 2013 5-10pm.
TIME: Doors open at 5:15 pm, dinner served at 6:00 pm.
PLACE: Waverly Heights Community Centre, 1885 Chancellor Drive (next to Arthur Leach School)
WHAT: Enjoy a Family Style served dinner and then a dance to follow! Door Prizes!
MDSS MEMBERS COST: 10 years and older - $10; 2-9 years - $5
NON MEMBERS COST: 10 years and older - $15; 2-9 years - $10
Dance to the sound of Crystal Sound and Lights DJ.
You MUST pre-order and you can pay by credit card or cheque. Call Karen at 204-275-5927. RSVP NO LATER THAN NOVEMBER 10th
In November 2006, Lisa’s Saturday Night Livewires was established. The creation of Livewires was in response to the wishes of Lisa Mitchell, a beautiful young member who had passed away that year. Lisa wanted MDSS to create a social club for individuals with Down syndrome, and we parents needed a venue for socialization for our kids! Lisa's amazing friends fundraised specifically to fund such a program!
The 2013-2014 season sees Livewires still going strong, meeting twice monthly. The teens are now wonderful young adults. The mandate for Livewires remains the same - for young people to have an opportunity to ‘hang out’ on a Saturday night, withNO PARENTS ALLOWED!
We are now seeking TWO GIRLS BETWEEN THE AGES OF 19 AND 24 to join the group. Please contact the office (email@example.com or 204-992-2731) ASAP if you are interested in your daughter trying out the program. Upcoming meetings are on the October 5th and the 12th, November 2nd and 9th, and December 5th at Church of the Way on Lilac Street. Cost to families is $150.00 per year, with a current MDSS membership.
PLEASE NOTE: If you have a younger teen, and are interested in starting up a new group for them, MDSS is more than pleased to provide a budget, and help you get things up and running. Contact Mina at the office to get the ball rolling.
MDSS is excited to announce that we have once again been invited to submit the names of two children to take part in the Dreams Take Flight Program. Dreams Take Flight provides a one day, all-expense paid trip to Disney World for each child and a caregiver.
If you are a current MDSS member and you have a child between the ages of 6 and 12 years old who has not participated in the program before, you qualify to enter the draw. DEADLINE FOR SUBMISSION OF YOUR CHILD’S NAME IS 1:00 P.M. ON MONDAY, OCTOBER 14TH.
Please visit http://www.ywg.dreamstakeflight.ca/ particularly the What to Expect page, to determine if you would like to put your child’s name forward. All participants must have passports, and the signatures of both custodial parents are required on the application forms.
The draw for the 2 spots will take place at our October 16th Board Meeting. Winners will be contacted the evening of October 16th
The next Buddy Night will be a Halloween Dance held on Saturday, October 19th from 6:30 to 9:30pm at the Fort Rouge Leisure Centre at 625 Osborne St. We encourage everyone to wear a costume.
This event is open to all members of MDSS between the ages of 16-28 years. Buddy nights are supported by paid staff and volunteer parents.
Cost for this evening is $6.00. Drinks are available for purchase (50 cents each). To register for this event please email Karen Pfeifer at 204-897-0739 or firstname.lastname@example.org.
The 2013 Buddy Walk is fast approaching. Register for the MDSS Buddy Walk by sending an email to email@example.com
MDSS Newsletter Editor needed ASAP. Contact the MDSS President Lorraine at firstname.lastname@example.org for more information or to volunteer for this position. Past Newsletters can be seen on our website.
We’d like to feature our members in our future Newsletters. If there is something special you’d like to share in words and photos, please email it to Lorraine. Send news about graduations, awards, hobbies!
The 2013 Buddy Walk is fast approaching! We want to extend a big THANK YOU to all of the generous sponsors! For more information on the Buddy Walk see the Events page. Download the pledge sheet and join us for this wonderful celebration.
The next MDSS Board Meeting will be held on September 18th, 2013 at 7 pm at 825 Sherbrook Street.
The board welcomes proposals for new events, programs and committees.
Members are always welcome to join board meetings. Please contact the office to advise us if you will be attending a board meeting as a guest.
We encourage each of you to consider joining the MDSS board. Contact the office if you are interested!
MDSS wishes to thank the new Buddy Walk Sponsors; Wawanesa Insurance and Red River Co-op. Download the Buddy Walk pledge sheet now to get started for the 2013 Buddy Walk. Click here for the pledge sheet.
The Canadian Down Syndrome Society publishes a calendar annually with photo submissions from their members. The calendar is uniquely designed each year with vivid imagery and submitted photographs.
Each year photos are collected during the summer months. Photos can be submitted by email (to
email@example.com ) or through the CDSS website.
Calendars are generally available for purchase beginning in November of the year before the publication year of the calendar.
The deadline to submit photos for the 2014 Calendar is August 16, 2013.
Click here to download the Buddy Walk Pledge Sheet. We are excited to see everyone in September!
A big THANK YOU for our 2013 Buddy Walk Sponsors: XL Drilling, Ladco Company Ltd, Lawton Partners, Bayes Financial!
Click here to register for the See Me Beautiful Conference being held on November 4, 2013 at Canad Inns Polo Park.
The annual Buddy Walk date is set for September 29, 2013 to be held at the Canadian Mennonite University North Campus. The walk is for the whole family and helps raise awareness of People with Down syndrome. At this year's walk there will be a Silent Auction, activities and entertainment for everyone.
Volunteers are needed. If you are interested in volunteering please contact Val at 694-3530.
See Me Beautiful is an annual workshop is offered in the Fall for parents and school teams supporting a child with Down syndrome. The goal of the workshop is to empower support teams welcoming children with Down syndrome into their classrooms by:
1) providing information regarding Down syndrome, with a focus on learning characteristics and academic programming
2) providing a setting where educators and parents can interact informally.
The 2013 Conference will feature Carol Johnson on November 4th, 2013 at the Canad Inns Polo Park 8:30 - 3:30.
Carol is an instructor for the University of Calgary; Department of Disability Studies Program. Carol has authored two books; "Captain Chaos Lives Here: A Survival Guide for Raising Very Active Children" and "Teams Work: Teachers and Assistants Creating Success". Carol will be offering a session on Successful Teaching and Learning for Students who have Down Syndrome. Carol currently lives in Thailand where she was the Director of Mountain Smile International School for Special Needs for the past thre years.
To register for the conference contact Lori Lester at firstname.lastname@example.org or Joan Kolbauer at email@example.com or contact MDSS at 204-992-2731.
Making Waves Winnipeg provides affordable and accessible one-on-one swimming instruction to children with special needs. Volunteers are needed for the next session.
Do you like working with kids? Do you have a background in aquatics? Do you want to make a difference in a child's life? Volunteer 1 hour a week to teach a child how to swim!
If you want to volunteer for Making Waves contact Cameron Krisko at 204-612-4440 or go to www.makingwaveswinnipeg.org
Join us Friday night as we kick off the 2013 Canadian Down Syndrome Society Conference at our family-friendly event to Celebrate Diversity. The night will include a variety of presentations and activities celebrating Canada’s cultural diversity. Each corner of the room has another exciting experience to be had.
There will be an exciting Rainbow Auction that contains prizes of all kinds. Don't miss out!
It all begins at 6:00 pm, so be sure to come and meet all of the families attending the conference. Snacks will be provided in the spirit of a Manitoba Social.
MDSS invites you to our AGM on June 12th 2013 at 7pm. It will be held at the Association For Community Living-Manitoba office at 6-120 Maryland St.
If you would like to know what your MDSS did for you this year, or you are interested in becoming a Board member, this is the perfect opportunity as we will be electing the Board Directors. There will be a mix and mingle reception after the meeting.
Take advantage of the CDSS Conference Early Bird deal! Members of the Canadian Down Syndrome Society can register for the conference for $225 and non-members can register for the conference for $275. Early Bird ends April 15!
If you are a member of the Manitoba Down Syndrome Society, early registration has additional benefits. The Manitoba Down Syndrome Society will reimburse members for one paid Early Bird registration per family ($225.00 value) to a total of $10,000.00. Pay your registration on line at www.downsyndromeconference.ca, and then submit your receipt to 204-825 Sherbrook St, Winnipeg, Manitoba, R3A 1M5 for reimbursement.
If you cannot spend the weekend with us, but have a few hours to volunteer, or you know someone who would love to volunteer, please contact Joan Kolbauer at firstname.lastname@example.org
As a part of the Friday night celebration we will be having a Rainbow Auction table. All prize donations gratefully accepted. Please contact Olivia at email@example.com
If you have inquires about Sponsorship or would like to reserve your place as a sponsor for the 26th Canadian Down Syndrome Conference please contact Caroline at firstname.lastname@example.org
Baby Love is a semi-annual event sponsored by the Manitoba Down Syndrome Society. This event is an informal gathering for families with young children with Down syndrome. We hope you take advantage of this opportunity to meet with families of toddlers, children and young adults with Down syndrome who have been involved with the Manitoba Down Syndrome Society over the years.
Baby Love takes place on April 13th, 2013 from 10 AM until 1 PM at the St. Saviour's Anglican Church Hall located at 690 Munroe Avenue. Coffee, Tea, Juice and snacks will be served. There will be entertainment for the children.
Please register for this event by contacting MDSS at 204-992-2731.
Are you over 6 years old and want to be part of the Conference? Canadian Down Syndrome Society is looking for people with Down syndrome to represent their province at the Winnipeg Canadian Down Syndrome Conference in May. Represent your province during our Saturday morning Opening Ceremony!
Must be over 6 years old (or able to carry a standard flag and flag pole)
Must be in Winnipeg, MB for the conference - specifically on May 18, 2013
Must wear black trousers (or skirt) and a white shirt
Interested? Email Corrine Grieve, Information Coordinator, at email@example.com the following:
Your parent's name
Based on availability, some people may be asked to represent another province.
The deadline to apply is March 31, 2013.
World Down Syndrome Day is the international day for raising awareness for people with Down syndrome. It occurs annually on March 21 and is officially ratified by the United Nations.
21 March 2013 marks the 8th anniversary of World Down Syndrome Day, a global awareness day which has been officially observed by the United Nations since 2012. Each year the voice of people with Down syndrome, and those who live and work with them, grows louder. But there is still so much more we can do.Down Syndrome International encourages our friends all over the World to choose your own themes, activities and events to help raise awareness of what Down syndrome is, what it means to have Down syndrome, and how people with Down syndrome play a vital role in our lives and communities.
Canadian Down Syndrome Society invites all Canadians to “See the Ability”! Take a picture like the one above – a photo of you with your loved ones and friends holding up a sign that says “See the Ability” and send it to us. We’ll make a photo montage video, with the collection of photos, and post it on World Down Syndrome Day to show the world that Canadians “See the Ability!”
For more information visit the website;
For World Down Syndrome Day, the Canadian Down Syndrome Society would like to acknowledge some of the incredible people with Down syndrome in Canada. Five (5) people will be named the 2013 Canadian Down Syndrome Heroes. These Heroes will have their stories told in an upcoming issue of Voices. Their names will be announced on World Down Syndrome Day, March 21, 2013.
Visit this website for more information;
The next MDSS Buddy Night is going to be an evening of dinner followed by 3 hours of karaoke. All members of MDSS aged 16 - 28 years are invited to attend. The dinner will take place at Oakwood Café with karaoke to follow at the Fort Rouge Leisure Centre.
Dinner starts at 4:45 PM at the Oakwood Cafe located at 660 Osborne Street. Karaoke follows dinner across the street at the Fort Rouge Leisure Centre from 6:30 - 9:30 pm. The cost is $25 for each participant which covers the meal, tax, tip and karaoke party. Please contact Karen Pfeifer at firstname.lastname@example.org to register and include your meal choice. There are only 20 spots available so register early to avoid disappointment.
Meal choices are:
Chicken fingers, fries, drink
Clubhouse wrap fries, drink
Hot turkey sandwich, fries, drink
Perogies, kolbassa, drink
Fettucine alfredo, garlic toast, drink
The annual CDSS conference is being held in Winnipegin 2013. Volunteers are needed from May 17 – 20, 2013 for a variety of tasks and time slots. Contact Joan Kolbauer at email@example.com today!
Each year, Canadian Down Syndrome Society (CDSS) hosts the Canadian Down Syndrome Conference, in partnership with local organizations like The Manitoba Down Syndrome Society (MDSS). The conference draws accomplished speakers who share knowledge, experience, and skills with a diverse group of delegates. Those attending the conference include people with Down syndrome, parents and family members, professionals, and others who want to make a difference in the community.
This conference will draw over 400 people to downtownWinnipegduring May 2013. Attendees will have opportunity to acquire valuable information from uplifting testimonials and empowering speakers in addition to networking with other parents and professionals.
Ruth Joseph, an MDSS Board Member and VATTA Vice-Chair, wrote an article titled New Year New Goals which has been published on the VATT Blog. To read the article, visit http://cdss.ca/network/vatta/
The Voices at the Table Advocacy Committee (VATTA) is composed of a group of adults with Down syndrome who believe that through their diversity and advocacy efforts, equitable opportunities will be available for all Canadians. This exciting project has created a valuable Canadian resource that brings a unique personal perspective to guide the work of the Canadian Down Syndrome Society. Objectives of VATTA also include regularly advising the Canadian Down Syndrome Society (CDSS) about issues important to adults with Down syndrome.
The MDSS Board members wish everyone a very happy holiday.
Olivia & David Hawrysh
A new session of Dance-Ability has been announced for February 2013.
For youth living with disability, this one-hour class incorporates elements of ballet, modern and creative movement disciplines in an enthusiastic and supportive setting. This programming encourages agility, flexibility, improved motor function & coordination, fine and gross motor movement, and overall improved body awareness. Incorporating concepts from yoga and pilates, the program motivates individuals full movement ability and self expression, in a fun and supportive environment
Congratulations to the 2013 Dreams Take Flight Winners!
Riding High to Disney World in April 2013 will be: Ben Sokal & Hailey Lester. Stay tuned for the 2014 contest. Applicants must be 12 years old or younger and their family must be a member of MDSS. Another great benefit of being an MDSS Member.
Not a member? Contact our office to become a member today.
Did you know that Ruth is an MDSS Board Director and the Vice-Chair of VATTA? The Voices at the Table Advocacy Committee (VATTA) is composed of a group of adults with Down syndrome who believe that through their diversity and advocacy efforts, equitable opportunities will be available for all Canadians.
The Voices at the Table Advocacy Committee (VATTA) is composed of a group of adults with Down syndrome who believe that through their diversity and advocacy efforts, equitable opportunities will be available for all Canadians. This exciting project has created a valuable Canadian resource that brings a unique personal perspective to guide the work of the Canadian Down Syndrome Society. Since it’s inception in 2005, the VATTA Committee has celebrated significant accomplishments.
During National Down Syndrome Awareness week a new member was announced for the VATTA team: Brando, a businessman, entrepreneur, and public speaker from Lethbridge, AB.
Visit the VATTA website to see the team’s Blog: http://cdss.ca/network/vatta/
To celebrate Day 1 of the National Down Syndrome Awareness Week, the Canadian Down Syndrome Society and the Manitoba Down Syndrome Society announced the 2013 Keynote Speaker: Lauren Potter, actress on Glee and self-advocate!
An inspiration to all, Lauren Potter has proven herself a young woman of strength and of character. When Professionals told her she ‘couldn’t’ or ‘wouldn’t’, she worked herself harder- sometimes to the point of exhaustion. Barriers and limitations put before her became a personal challenge to let people know she is worthy of high ideals and capable of great expectations.
For more information on Lauren and the conference visit www.downsyndromeconference.ca/
Celebrate National Down Syndrome Awareness Week by attending the MDSS 10th ANNUAL FAMILY DINNER & DANCE!! WHEN: December 1, 2012 5-10pm. TIME: Doors open at 5:15 pm, dinner served at 6:00 pm. PLACE: Waverly Heights Community Centre, 1885 Chancellor Drive WHAT: Enjoy a Family Style served Turkey dinner and then a dance to follow! COST: 13 years and older - $10.00 2-12 years - $5 Under 2 years – free **dance to the sounds of Crystal Sound and Lights DJ. Door Prizes!** RSVP NO LATER THAN NOVEMBER 20th by calling Karen at 275-5927. MDSS is pleased to subsidize this event from generous donations and fundraising events like the Buddy Walk.
Canadian Down Syndrome Society's 2013 Calendar's are ready. Order yours today for $15. All proceeds from the sale of the calendar go to providing information, advocacy and education about Down syndrome to all Canadians.
To Order go to: www.cdss.ca or call 1-800-883-5608. Hurry before the sell out!
NDSAW is a public awareness campaign created by the Canadian Down Syndrome Society focusing on the unique strengths and abilities of people with Down syndrome. By doing so, we work to ensure equitable opportunities for all Canadians with Down syndrome.
National Down Syndrome Awareness Week is a time to:
We hope you will join us as we 'See the ability' along with all Canadians with Down syndrome.
Our next Buddy night is going to be an evening of dinner followed by a Halloween dance. There are 20 spots available so register early to avoid disappointment. Dinner will be served at the Oakwood Café at 660 Osborne St. at 5:00pm. Then we walk across the street to the Fort Rouge Leisure Centre to attend the Halloween Dance for 6:30pm to 9:30pm.
Meal choices are listed below and include both taxes and tip:
1) 8 perogies & kolbassa & drink - $16.00
2) Fish & chips & drink - $18.00
3) 4 chicken tenders & fries & drink - $15.00
4) Fettuccine alfredo & garlic toast & drink - $14.0
5) Bacon/cheese quiche & salad & drink - $14.00
MDSS Members should contact Karen or the MDSS Office today to register! See you there. Start planning your costume now! BOOOOOO!!!!!!!!
MDSS 10th ANNUAL FAMILY DINNER & DANCE!! December 1, 2012 5-10pm at Waverly Heights Community Centre,1885 Chancellor Drive. Doors open at 5:15 pm, dinner served at 6:00 pm. Enjoy a Family Style servedTurkeydinner. After dinner, dance to the sounds ofCrystalSoundand Lights DJ!
COST: 13 years and older - $10.00 2-12 years - $5 Under 2 years – free. RSVP NO LATER THAN NOVEMBER. You must pre-order and can pay by credit card or cheque by calling Karen at 275-5927.
MDSS is pleased to subsidize this event from generous donations and fundraising events like the Buddy Walk.
Baby Love - October 13, 2012 10:00 AM to 1:00 PM
An Informal Gathering for families with young children with Down syndrome at St. Saviour’s Anglican Church Hall, 690 Munroe Avenue.
Coffee, Tea, Juice and Snacks will be provided. Entertainment by Sonja from Wee Be Jammin!Contact MDSS if you are interested in attending this event.
LIVEWIRES VOLUNTEERS NEEDED!
Livewires gatherings provide opportunities for our young people to get together for fun, social Saturday evenings - without parents! The club generally meets twice per month from 7p.m. to 10p.m. in the big hall at Church of the Way in River Heights, where they ‘hang out’ as only young people can do. Occasional outings, such as bowling or min-golf, have been great fun as well.
Volunteer Information: Please email firstname.lastname@example.org if you are interested.
HISTORY of Livewires; Lisa’s Saturday Night Livewires, a social club for young people with Down syndrome, was formed in the fall of 2006. It was a dream of one of our beautiful young ladies - Lisa Mitchell. Sadly, Lisa passed away at a tender young age and was not able to see the group formed. The group lives on in her name.
The Dance-Ability program is a great way to motivate youth to be active, and works on developing agility, balance, coordination, focus, and improved motor function. With over 20 years teaching experience in the Winnipeg dance community, AD4L teacher Jacqui Davidson is excited to help children and adults explore their full ability through dance and music! Jacqui holds a B.A. in Kinesiology, is a graduate of the RWB Professional Divisions Teacher Training Program, and holds her Associate Diploma certification in the Cecchetti Method of Classical Ballet.
For more information:
Call (204) 250-3326
The 5th Annual Buddy Walk will be held Sun Sept 23 from 12:00 to 4:00 p.m. at Canadian Mennonite University, 500 Shaftsbury Blvd. Registration begins at 12 noon and the walk begins at 2pm. There are two routes: 3 KM and a 1 KM walk. Pre-register by emailing email@example.com. Provide us your name, the buddy you are walking for, the number of participants and their ages.
Open house at The Children’s Acting Studio, 262 Balfour Ave, Sept 13 7:00pm- 8:00pm and Sept 15 at 9:30 am- 10:30 am
This Open House is intended for parents who are open to exploring their child taking acting classes for TV / FILM / COMMERCIALS. This meeting allow parents to see where there child would be training and for the instructor to meet the students. Children will need to know how to read and be able to memorize lines.
Please RSVP to firstname.lastname@example.org if you will attend
Our next Buddy Night is being held on September 22nd, 2012 from 6:00 – 9:00pm at the Academy Bowling Lanes. The evening will include glow bowling followed by pizza, drinks and fun in the party room. Cost to participate is $15.00 per person which will cover the bowling, shoes, and food. Extra money can be brought by the individual if desired to have a drink while bowling.
Buddy Night is open to all MDSS members aged 16 – 27 years. Events are supervised by volunteer parents and paid staff.
Parent drop-off is on the main floor at 6:00pm with pickup in the party room at 9:00pm upstairs in the party room.
Please register by calling or emailing Karen Pfeifer @ 204-897-0739 or email@example.com. Hurry as the 18 spots will fill quickly!
If you are a self-advocate and would like to join VATTA (or know someone who might), this is your chance! The deadline for applications is September 10, 2012. If you have any questions, call The Canadian Down Syndrome Society (CDSS) at 1-800-883-5608.
The Voices at the Table Advocacy Committee (VATTA) is a group of adults with Down syndrome who advocate across Canada for equal rights and opportunities.
VATTA is looking for 1 new member to join their advocacy team!
THE DISTANCE OF THE SHORT WALK HAS BEEN CHANGED TO 1 KM FROM 1/2 KM .
The 5th Annual Buddy Walk will be held Sun Sept 23 from 12:00 to 4:00 p.m. at Canadian Mennonite University, 500 Shaftsbury Blvd. Registration begins at 12 noon and the walk begins at 2pm. There are two routes: 5 KM and a 1 KM walk.
Dominos will have pizza for purchase, music provided by Free Ride. There will also be clowns, mascots, face painting, balloon art, magic, & games for the participants to enjoy before the walk. We hope to see you there!
Stay Tuned for the Fall 2012 Buddy Night information. Please keep September 22nd, 2012 free for this fun event!
Our Spring Buddy Night took 18 people to supper at The Original Pancake House, then travelled by limos to a Hawaiian Dance at the Fort Rouge Leisure Centre.
For more information on Buddy Nights contact Karen Pfeifer at 897-0739
To help us plan for Buddy Walk 2012, we request that you register your team in advance. Please forward the following details to firstname.lastname@example.org
The Canadian Down Syndrome Society is now accepting submissions for the 2013 Calendar! Deadline is August 31, 2012. To submit an image for the calendar you must have a valid membership with the Canadian Down Syndrome Society and complete the photo release form.
The Canadian Down Syndrome Society publishes a calendar annually with photo submissions from our members. The calendar is uniquely designed each year with vivid imagery and submitted photographs. Go to http://www.cdss.ca/annual-calendar.html for more information.
Understanding a Down Syndrome Diagnosis — the only prenatal booklet to have been reviewed by representatives of the national medical and Down syndrome organizations — is now available as a free digital book for all. Their goal is simple: to make sure that all pregnant women and their medical providers have access to the most accurate, balanced, and up-to-date information about Down syndrome.
Get a copy today at lettercase.org
Each November we hold our Annual Dinner & Dance with over 200 people in attendance. This year the Dinner & Dance will be held on Saturday, December 1st, 2012. A delicious family style meal is served, door prizes are won, and a DJ is hired to keep the dance floor hopping.This event is held in November to correspond with our celebration of National Down Syndrome Awareness Week! From the littlest tykes to young adults to grandparents, a great time is had by all.
Contact Karen Nichols - 275-5927
Making Waves Winnipeg is a not-for-profit student initiative which recently started a swim program in Winnipeg. Their mission is to provide affordable and accessible one-on-one swimming instruction to children with special needs.Waves is new to Winnipeg but was previously established in in Halifax, Hamilton, London, Winnipeg, Montreal, Niagara, Toronto, Okanagan and Ottawa. In the first Winnipeg session there were only 10 kids and now there are 34 kids! Of the 34 in the program today, 12 of the participants have Down syndrome. Help support this non-profit program by registering for their 2nd annual fund raising golf tournament at Breezy Bend Country Club on Monday, August 13th, 2012.
Due to the high volume of participants with Down syndrome, MDSS would like to help support this program by reimbursing MDSS Members $50 of the $125 tournament registration fee for up to ten golfers. Please contact MDSS to sign up for this opportunity!
Sunday, September 23, 2012 – Buddy Walk
Canadian Mennonite University, North Campus
Buddy Walk – an annual walk held in September. The Walk is for the whole family and helps raise awareness of people with Down syndrom. At this year’s walk there will be a Silent Auction, activities and entertainment for everyone. Domino’s Pizza will be available to purchase.
Volunteers are needed. If you are interested in volunteering please contact Val at 694-3530.
As we prepare for another SEE ME BEAUTIFUL conference in October we are looking for new pictures. Please send pictures of our children having fun, hobbies or sports which they like to do, being themselves as opposed to posed photos. Digital images can be e-mailed to email@example.com. Arrangements can be made for prints to be mailed via Canada Post. We are accepting photos up to September 30. Ensure that you have completed a photo consent form for MDSS. Click Here for Consent Form.
Fun events which provide opportunities for families to meet other families to share stories and form friendships. Next event: Goldeye's Game June 24th at 1:30 PM in prime section "F". Contact Karen Nichols - 275-5927 to get tickets by May 24th. Cost: MDSS members 1/2 price - $7. MDSS members who have Down syndrome - free. All other family and friends - $14. Payment can be made by credit card over the phone or mail a cheque. If you need to renew your membership or become a new member - please call Mina at MDSS office 992-2731. Thank you for supporting MDSS with your active membership.
MDSS is pleased to announce the launch of our new website created by Tier3. We look forward to sharing the latest news and events on our improved homepage. We invite you to visit our events page showcasing upcoming and past events.
Thank-you for your continued support during this transition.