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Books

 
Adolescents / Adults / Sexuality
Book Title Year Published

Adolescents with Down Syndrome

Author: Siegfried M. Pueschel

1998

Adolescents with Down Syndrome: International Perspectives on Research and Programme Development

Author: Dr. Carey J. Denholm & Dr. James Wards, eds. University of Victoria, Victoria, BC

1991

Adults With Down Syndrome: Together We Can Do It

Author: Particle L. Lawrence Roy I. Brown, Josephine Mills Irene Estay Publisher: Captus Press Inc. North York, ON

 1993

Connections: A Planning Guide for Parents of Sons and Daughters with a Mental Handicap

Author: Kenneth V. Pike Pauline F. Steinmann Fundy Regional Council Association for Community Living

 1992

Couples with Intellectual Disabilities Talk about Living and Loving

Author: Karin Melberg Schwier, ed. Publisher: Woodbine House Inc. Bethesda, MD

 1994

Count Us In; Growing up with Down Syndrome

Author: Jason Kingsley and Mitchell Levitz Publisher: Harcourt Brace and Company New York, NY

 1994

Educational Justice for Special Needs Young Person

Author: Yude M. Henteleff, Q.C, Winnipeg, MB.

 1993

I Openers - Parents ask questions about sex

Author: David Hingsburger

 1993

Laying Community Foundations for Your Child with a Disability.  How to Establish Relationships that Will Support Your Child After You’re Gone

Author: Linda J. Stengle, M.H.S. Publisher: Woodbine House, Inc. Bethesda, MD

 1996

Sexuality, Relationships & Me A series of eight sexuality booklets for young adults:

Being around Other People
Changes in your body for girls
Changes in your body for boys
Pregnancy and sexually transmitted diseases
Intimacy and marriage
Facts on sexual hurting
Masturbation & privacy for girls
Masturbation & privacy for boys

Author: Canadian Down Syndrome Society

 2000

Mental Wellness in Adults with Down Syndrome: A guide to emotional and behavioral strengths and challenges

Author: Dennis McGuire, Ph.D. & Brian Chicoine, M.D. Publisher: Woodbine House Bethesda, MD

 2006

Sexuality: Your Sons & Daughters with Intellectual Disabilities

Author: Karin Melberg Schwier & Dave Hingsburger, Paul H. Brookes Publishing Co.

 2000

Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality

Author: Terri Couvenhoven, M.S. Woodbine House

 2007

Adults with Down Syndrome

Author: Siegfried M. Pueschel Paul H. Brookes Publishing Co.

 2006

Top

Behaviour
Book Title Year Published

Common Sense Discipline

Author: Lois Dewsnap

1995

Solving Behaviour Problems in Autism; Improving Communication with Visual Strategies

Author: 

Linda A Hodgdon, Publisher: Quirk Roberts Publishing, Troy, Michigan

1999

Captain Chaos Lives Here

Author: Carol Johnson, PREP Program, Calgary, AB

1992

Common Sense Discipline; Building Self-Esteem in Young Children

Author: Dr. Grace Mitchell, Lois Dewsnap, Publisher: Telshare Publishing, Glen Burnie, MD

1995

Louder Than Words

Author: Jenny McCarthy, Penguin Group (USA) Inc.

2007

No More Meltdowns

Author: Jed Baker, Ph.D. Future Horizons

2008

Fasten Your Seatbelt: A crash course on Down syndrome for brothers and sisters

Author: Brian G. Skotko & Susan P. Levine Woodbine House

2009

Just Give Him the Whale!

20 Ways to Use Fascinations, Areas of Expertise, and Strengths to Support Students with Autism

Author: Paula Kluth & Patrick Schwarz, Paul Brookes Publishing Company

2008

Down Syndome:  When To Worry About Mental Health And What To Do About It!

A Guide For Parents And Care-Givers

Author: Robin Friedlander, M.D. & Peter Johnson, Ph.D.

2009

Top

Children / Siblings
Book Title Year Published

Thicker than Water Essays by adult siblings of people with disabilities

Author: Meyer, Donald J. Bethesda, MD: Woodbine House

2009

Are There Stripes In Heaven?

A story about Patrick and his older sister Colleen who has Down syndrome

Author: Lee Klein, Paulist Press Mahwah, New Jersey

 1994

Be Good to Eddie Lee

A story about friendship

Author: Virginia Fleming, Publisher: Philomel Books, New York, NY

 1993

Big Brother Dustin

A story about Dustin welcoming a new bay into the family

Author: Alden R. Carter, Albert Whitman & Co. Morton Grove, Illinois

 1997

Dustin’s BIG School Day

Author: Alden R. Carter, Albert Whitman & Company, Morton Grove, Illinois

 1999

For Pete’s Sake

Author: Ellen Stoll Walsh, Harcourt Brace & Company, New York, NY

 1998

Hi, I’m Ben - And I’ve Got a Secret

Author: Julie A. Bouwkamp, Band of Angels Press, Rochester Hills, Michigan

 1995

How Smudge Came

A story of a young girl with Down syndrome in a group home who finds a puppy

Author: Nan Gregory, Red Deer College Press

 1995

My Brother Matthew

Author: Mary Thompson 

 1998

My Sister is Special

Author: Larry Jansen, First Paperback Printing

 1998

Our Brother Has Down Syndrome

An Introduction to Down Syndrome

Author: Shelly Cairo, Annick Press Ltd. Toronto, ON

 1985

We’ll Paint the Octopus Red

Welcoming a new baby with Down syndrome

Author: Stephanie Stuve-Bodeen, Woodbine House

 1998

Idea Man

Author: Karin Melberg Schwier, Diversity Press

 1997

It’s Okay to Be Different

Author: Todd Parr Little, Brown & Company

 2001

I Just Am

A Story of Down Syndrome Awareness and Tolerance

Author: Bryan and Tom Lambke, Five Star Publications

 2006

Me Hailey

An understanding teacher helps her students welcome Hailey, a 5-year old with Down syndrome who is excited about starting kindergarten

Author: Sherri Plucker (Illustrated by Todd Fargo) Jason & Nordic Publishers

 2005

Top

Education
Title Year Published

A Special Education

One family’s journey through the maze of learning disabilities

Author: Dana Buchman, Da Capo Press

2006

Teaching Reading to Children With Down Syndrome; A Guide for Parents and Teachers

Author: Patricia L. Oelwein, Publisher: Woodbine House, Bethesda, MD

1995

Teaching Math to People with Down Syndrome and Other Hands-On Learners: Basic Survival Skills

Author: DeAnna Horstmeier, Ph.D

 2004

Home Based Computer Program for Children with Down Syndrome

Author: Jeffery Willner, National Down Syndrome Society, New York, NY

1990

Married with Special-Needs Children

A Couples’ Guide to Keeping Connected

Author: Laura E. Marshak, Ph.D, Fran Pollock Prezant, M.Ed., CCC-SLP, Woodbine House

2007

Meeting the Educational Needs of Children with Down Syndrome

Author: Sue Buckley and Gillian Bird, University of Portsmouth, Sara Duffen Centre, Southsea, England

 1994


Schooling Children with Down Syndrome. Toward an Understanding of Possibility

Author: Christopher Kliewer, Teachers College Press, New York, NY

1998

Stars of Success

Understanding  How Children with Down Syndrome Learn

Author: Susan J. Peoples, Special Offspring Publishing, Fort Wayne, Indiana

 2004

Teaching by Design

Using Your Computer to Create Materials for Students with Learning Differences

Author: Kimberly S. Voss, Woodbine House, Bethesda, MD

 2005

Top

General Knowledge / Parenting
Book Title Year Published

Down Syndrome Parenting 101 

Author: Natalie Hale, Bethesda, MD: Woodbine House

2011

Babies with Down Syndrome 

A New Parents’ Guide (Third Edition)

Author: Edited by S. J. Skallerup, Woodbine House

2008

Babies with Down Syndrome

A New Parents Guide Second Edition

Author: Karen Stray-Gundersen, ed.

1995

Babies with Down Syndrome

A New Parents’ Guide

Author: Karen Stray-Gundersen, ed.

1986

Breakthrough Parenting for Children with Special Needs

Author: Judy Winter, Jossey-Bass, A Wiley Imprint

2006

Child of the World

Author: Helen Kelsey-Etmanski, Canadian Down Syndrome Society, Calgary

 

Down Syndrome: The Facts

Author: Mark Selikowitz, Oxford University Press, New York, NY

1990

Down Syndrome: The Facts: Second Edition

Author: Mark Selikowitz, Oxford University Press, New York, NY

1997

Living With Down Syndrome

Author: Jenny Bryan, Steck-Vaughn Company, Austin, TX

1999

Down Syndrome: Living and Learning in the Community

Author: Lyn Nadel & Donna Rosentha, Wiley-Liss Inc., New York, NY

1995

The Special Needs List - An Annotated Guide to the Best Publication for Parents & Professionals

Author: Wilma K. Sweeney, Woodbine House

1998

Handbooks for Strengthening Grassroots Advocacy

Author: Developed by Canadian Council for Exceptional Children Advocacy & Governmental Relations Committee Adapted by Jacklyn A. Bootel & Editorial Assistance, Harry Dahl

2002

Successful Parenting of Children with Down Syndrome

Author: John F. Unruh, Ph.D.

1994

Reflections from a Different Journey: What Adults with Disabilities With All Parents Knew

Author: Stanley D. Klein, Ph.D. and John D. Kemp

2004

The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles

Author: Joan E. Guthrie Medlen

2002

Married with Special-Needs Children: A Couples’ Guide to Keeping Connected

Author: Laura E. Marshak, Ph.D, Fran Pollock Prezant, M.Ed., CCC-SLP, Woodbine House

2007

You will Dream New Dreams: Inspiring personal stories by parents of children with Disabilities

Author: Stanley D. Klein, PH.D. and Kim Schieve, Kensington Publishing Corp.

2001

Top

Language & Communication
Book Title Year Published

Childhood Speech Language & Listening Problems: What Every Parent Should Know

Author: Patricia McAleer Hamaguichi, Publisher: John Wiley & Sons, New York, NY

1995

Communicate with Your Child: 15 Ways to become a Communicator

Author: James D. MacDoand & Barbara Mitchell, Communicating Partners Center, Columbus, Ohio 43202

 

Communication Skills in Children with Down Syndrome: A Guide for Parents

Author: Libby Kumin, Ph.D., CCC-SLP, Publisher: Woodbine House, Rockville, MD

1994

Early Communication Skills

Author: Charlotte Lynch & Julia Kidd, Publisher: Winslow Press, Bicester, Oxon, UK

1999

Early Communication Skills for Children with Down Syndrome

Author: Libby Kumin, Ph.d., CCC-SLP, Publisher: Woodbine House

2003

Early Listening Skills

Author: Diana Williams, Winslow Press, Bicester, Oxon, UK

1999

Early Sensory Skills

Author: Jackie Cooke, Winslow Press, Bicester,  UK

1999

Exceptional Language Development with Down Syndrome

Author: Jean A. Rondal, Cambridge University Press

1995

Improving the Communication of People with Down Syndrome

Author: Jon F. Miller, Mark Leddy, Lewis A. Leavitt

1998

The New Language of Toys: Teaching Communication Skills to Children with Special Needs

Author: Sue Schwartz, Ph.D., Joan E. Heller, Ed.M., Woodbine House Inc., Bethesda, MD

1996

Signs for Me: Basic sign vocabulary for children, parents teachers

Author: Ben Bahan & Joe Dannis, Dawn Sign Press, USA

1990

Talk! Talk! Talk!

Author: Nicole Muir, Kathryn Gerylo, Monica Gompf, Theresa Burke, Pat Lumsden, Sandra McCaig, Thinking Publications, Eau Claire, WI

2000

Speech & Language Intervention in Down Syndrome

Author: Edited byJean A. Rondal & Sue Buckley, Whurr Publishers Ltd., London, UK

2003

Speech & Language Development & Intervention in Down Syndrome & Fragile X Syndrome

Author: Joanne E. Roberts, Robin S. Chapman, & Steven F. Warren Paul Brookes Publishing Co.

2008

Top

Medical
Book Title Year Published

Biomedical Concerns in Persons with Down Syndrome

Author: Sigfried M. Pueschel & Jeanette K. Pueschel, Paul H. Brookes Publishing, Baltimore, MD

1992

Down Syndrome - Advances in Medical Care

Author: Ira T. Lott & Ernest E. McCoy, eds, Wiley-Liss, Inc. New York, NY

1992

Down Syndrome and Alzheimer Disease

Proceedings of the National Down Syndrome Conference on Down Syndrome and Alzheimer Disease

Author: Lynn Nadel & Charles J. Epstein, eds. Publisher: Wiley-Liss, Inc. New York, NY

1992

Medical Care in Down Syndrome: A Preventive Medicine Approach**

Author: Paul T. Rogers and Mary Coleman, Marcel Dekker Inc. New York, NY
**on non-permanent loan to the MDSS from the Section of Clinical Genetics, Health Sciences Centre, Winnipeg**

1992

Medical & Surgical Care for Children with Down Syndrome

Author: D. C. Van Slyke, Philip Mattheis, Susan Schoon Eberly & Janet Williams, Woodbine House Inc. Bethesda, MD

1995

Perspectives in Nutrition: Third Edition

Author: Gordon M.Wardlaw 
& Paul M. Insel, Mosby - Year Book, Inc.

1996

The Psychobiology of Down Syndrome

Author: Lynn Nadel, ed. MIT Press, Cambridge, MA

1988

Solve Your Child’s Sleep Problems

Author: Richard Ferber, MD, Simon & Schuster, Inc.

1986

Alzheimer’s Disease and Dementia in Down Syndrome and Intellectual Disabilities

Author: Vee P. Prasher, Radcliffe Publishing Ltd.

2005

Advances in Down Syndrome Research

Author: G. Lubec (ed.) Springer Wien, New York

2004

Top

Motor Skills & Sensory Integration
Book Title Year Published

A Parent’s Guide to Understanding Sensory Integration

Author: Sensory Integration International, Inc.
Torrance, CA

1986

Fine Motor Skills in Children with Down Syndrome - A Guide for Parents and Professionals

Author: Maryanne Bruni, BSc, OT(C) Woodbine House

1998

Gross Motor Skills in Children with Down Syndrome - A Guide for Parents and Professionals (2 copies)

Author: Patricia C. Winder

1997

The Out of Sync Child: Recognizing and Coping with Sensory Integration Dysfunction

Author: Carol Stock Kranowitz, M.A, The Berkley Publishing Group, New York, NY.

1988

Understanding Sensory Integration

Author: Maryann Colby Trott, Marci L. Laurel, Susan L. Windeck, Therapy SkillBuilders, Tucson, AC

1993

Top

Parenting
Book Title Year Published

Down Syndrome: A Promising Future Together

Author: Terry Hassold & David Patterson

1999

Down Syndrome: An Introduction for Parents

Author: Cliff Cunningham, Brookline Books, Cambridge, MA

1988

Keys to Parenting a Child with Down Syndrome

Author: MarleneTarg. Brill, Barron’s Educational Series, Inc. Hauppage, NY

1993

Living with Down Syndrome

Author: Jenny Bryan, Steck-Vaughn Company, Austin, TX

1999

Parents Guide To Down Syndrome - Towards a Brighter Future

Author: Siegfried M. Pueschel

1990

The Source for Down Syndrome

This book offers a valuable resource for parents and professionals covering topics such as: feeding, oral-motor/motor & sensorimotor skill development, language development & intervention, speech development & intervention, augmentative communication as well as voice, resonance & fluency issues

Author: Catherine E. Chamberlain, Robin M. Strode, LinguiSystems, Inc.

1999

Parenting your Complex Child

Become a Powerful Advocate for the Autistic, Down Syndrome, PDD, Bipolar, or Other Special-Needs Child

Author: Peggy Lou Morgan, AMACOM

2006

Down Syndrome: An Introduction for Parents and Carers

Author: Cliff Cunningham, Souvenir Press, MPG Books Ltd.

2006

Raising a Kid with Special Needs

Author: Lisa Bendall & Key Porter Books

2008
   

Top

Personal Stories
Book Title Year Published

Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

Author: Edited by Kathryn Lynard Soper

2007

Magnus Family, A Family Love Story

Author: Magnus Family, ALEA Design and Pring, Mayne Island, BC

1994

A Life Worth Living: The True Story of Darline Koch

Author: Lena Reiser Koch, Hignell Book Printing

1996

After the Tears: Parents Talk about Raising a Child with a Disability

Author: Robin Simons, Harcourt Brace & Company, Orlando, Florida

1987

Another Season: A Coach’s Story about Raising an Exceptional Son

Author: Gene Stallings & Sally Cook, Little, Brown & Company

1997

Big Enough Dreams

Author: Edited by Debbie Marshall, Learning Community Press

2006

Changed by A Child: Companion Notes for Parents of a Child with a Disability

Author: Barbara Gill, Doubleday dell Publishing Group, Inc. New York, NY

1993

Chicken Soup for the Soul: Children with Special Needs

Author: Jack Canfield, Maark Victor Hansen, Heather McNamara, and Karen Simmons, Health Communications, Inc.

2007

Delicate Threads, Friendships between Children with and without Special Needs in Inclusive Settings

Author: Debbie Staub, Ph.D. Woodbine House, Inc. Bethesda, MD

1998

Eric’s Gift: A Mother’s Discovery of Unconditional Love in the 47th Chromosome

Author: Kimberly Thompson, Eric’s Gift Enterprises, Tampa, Florida

1998

Expecting Adam

Author: Martha Beck, Random House

1999

Fathers of Children with Special Needs: New Horizons

Author: James May, Association for the Care of Children’s Health, Bethesda, MD

1991

From the Heart: On Being the Mother of a Child With Special Needs

Author: Jayne D. B. Marsh, Woodbine House, Bethesda, MD

1995

Sometimes Miracles Hide Stirring Letters from Those Who Discovered God’s Blessings in a Special Child

Author: Bruce Carroll, Howard Publishing Co. West Monroe, Louisiana

1998

Uncommon Fathers Reflections on Raising a child with a Disability

Author: Donald J. Meyer, ed, Woodbine House, Bethesda, MD

1995

Views from Our Shoes Growing up with a brother or sister with Down syndrome Beth’s Successes

Author: Donald J. Meyer, ed, Woodbine House, Bethesda, MD

1997

Down Syndrome One Family’s Journey

Author: Reverend Donald C. Bakely

2002

Karina Has Down Syndrome

One Family’s Account of the Early Years with a Child who has Special Needs

Author: Cheryl Rogers and Gun Dolva

1998

Road Map to Holland

How I Found My Way Through My Son’s First Two Years with Down Syndrome

Author: Jennifer Graf Groneberg

2008

The Year My Son and I Were Born

Author: Kathryn Lynard Soper

2009

LIGHTNESS: Portraits & Stories of Individuals with Down Syndrome

Author: Ups and Downs, Calgary Down Syndrome Association

2009

Top

Siblings
Book Title Year Published

Head Above Water

Author: S. L. Rottman, Peachtree Publishers Ltd. Atlanta, Georgia

1999

Summer of the Swans

(winner of a Newberry Award)

Author: Betsy Byars, by Scholastic Inc.

1971

What About Me? Growing Up With a Developmentally Disabled Sibling

Author: Bryna Siegel & Stuart Silverstein, Plenum Press, New York, NY

1994

For the Love of Matthew

Growing up with Down Synrome

Author: Janice Credit Houska, Trafford Publishing

2002

Amy Ninette

My Sister with Down Syndrome

Author: Deanne Shead, America LLLP

2004

My Sister Annie

Author: Bill Dodds & Caroline House

1993

Being the Other One

Growing Up with a Brother or Sister Who Has Special Needs

Author: Kate Strohm, Wakefield Press, Australia

2002

Living with a Brother or Sister with Special Needs

A Book for Sibs. (2nd edition)

Author: Donald Meyer and Patricia Vadasy, University of Washington Press Seattle & London

1996

Fasten Your Seatbelt

A Crash Course on Down Syndrome for Brothers and Sisters

Author: Brian Skotko & Susan P. Levine

2009

Top

Special Interests
Book Title Year Published

Wings to Fly

Bringing Theatre Arts to Children with Special Needs

Author: Sally Dorothy Bailey, Woodbine House Inc. Bethesda, MD

1993

Down Syndrome and Sports

Author: M. J. G. Cremers, Janus Jongbloed Research Centre Ulrecht, The Netherlands

1993

Blue Ink in My Pen

Author: Edmonton Art Gallery & Prospects

1995

The Memory Keeper’s Daughter

Author: Kim Edwards, Penguin Books